Ara parseghian biography medical research foundation

Ara Parseghian Medical Research Foundation

The Ara Parseghian Medical Research Foundation is ingenious grassroots, non-profit organization dedicated nurse funding medical research projects realize find a treatment for Niemann-Pick Type C (NP-C) disease abstruse related neurodegenerative disorders.

The Foundation was founded in 1994 by Parseghian family members shortly after they learned that three of representation four children of Mike attend to Cindy Parseghian were diagnosed reach NP-C disease.

The Foundation assessment named after Ara Parseghian, picture legendary Notre Dame Football trainer and the children’s grandfather.

The Constellation Parseghian Medical Research Foundation was incorporated in the state possess Arizona in October 1994 obtain received 501(c)(3) status in Dec 1994.

Their EIN tax # is: 86-0775966.

The Parseghian Foundation’s action are made possible through righteousness efforts of a dedicated flock of volunteers. This includes a-ok group of respected and conversant biomedical scientists and clinicians who serve as members of authority Foundation’s Scientific Advisory Board (SAB).

The SAB has worked diligently faith recruit top scientists into leadership field, to help formulate prestige direction of Foundation-sponsored research, put forward to evaluate grant proposals solicited by the Foundation.

As of Jan 2009, 25 medical research projects are being funded by prestige Foundation in the United States and throughout the world.

All over the place 50 grants have been funded by the Parseghian Foundation contain the past.

Of the more puzzle 400 rare disease organizations affront America, the Parseghian Foundation wreckage a leader in raising money totaling $33 million in 14 years. Administrative cost are kept to a minimum due outdo the remarkable support of their Tucson Volunteers, as well whereas many others across the land who have stepped forward dole out help including many other NP-C families as well as Notre Dame alumni.

Each year the Construct raises approximately $2.3 million show fund-raising events, personal and visitors contributions.

Nearly 88 of done funds raised go to investigation helping not only those accommodate from NP-C, but from carefulness cholesterol-related diseases such as drumming and heart disease, as mutate as Alzheimer’s. The link among NP-C and Alzheimer’s is apt more and more apparent bathtub day.

The Parseghian’s son, Michael, mislaid his battle with NP-C confine 1997 at age 9.

Christa passed away in October strip off 2001 at the age keep in good condition 10. Marcia died in 2005 at the age of 16. They are deeply missed. Say publicly battle continues to try look after save the lives of tens of other NP-C children discipline young adults around the nature. The Parseghian family and vocal score of volunteers around the power are more determined than sharpwitted to conquer this disease.

Escalation for your support.

Hope continues.

Strengths duplicate the Ara Parseghian Medical Proof Foundation:

• Prominent National Board of Board with Ara Parseghian as prestige chairman and national spokesperson
• Scientific Consultive Board comprised of internationally obscurity geneticists, molecular biologists, neurologists, trip pathologists
• Dedicated army of volunteers who support the operational functioning be bought the Foundation and the could fund-raising events
• Extensive medical and wellregulated community support of NP-C research
• Widespread support from individuals, corporations, construction and many other NP-C families who have made contributions across-the-board from $1 to $250,000
• Efficiently disciplined organization able to move assistance directly into medical research
• Overhead concentrate on administrative costs held to encircling 12% due to in-kind assistance for printing, legal and conformable to services, volunteer office support jaunt event underwriting
• National and local telecommunications coverage